After launching a simple blog section on my website, I have already received some fantastic feedback and requests for more information as well as offers of collaboration. I now recognize there is a need out there for more content that is not complex and technical. In an effort to help educate and inspire others who have Brugada I have come up with a plan to help meet those needs.
First of all, this will be the last Brugada Post on this site as I’m going to have a new dedicated Brugada Care.org website and podcast which will be launching on November 1st. I will leave the posts and tab up for a couple more months so I can redirect traffic to the new site.
The BrugadaCare.org website is going to contain links to some essential resources. There will be some occasional simple blog posts while the bulk of the content will be podcast show previews and links. The podcasts will include interviews with other Brugada carriers and world renown medical professionals. I’m not going to actively announce this show to my friends beyond this post, as it’s geared specifically for people who have Brugada or for someone who is close to someone who has been diagnosed with the gene. This podcast will be a first of its kind on this topic. Feel free to check it out as the debut episode will be launched on November 5th, 2018.
On a personal level, I have been dealing with various issues since I first experienced an aborted Sudden Cardiac Death episode in 2010. I have had numerous cardiac arrests since including a rare Brugada Storm experience. Stress and other issues continue to trigger my health issues and the medication I am taking has some harsh side effects which have worsened as I have had to increase dosages. In the coming weeks, I will undergo a new surgery that has not been done in the United States yet which will hopefully improve if not cure my condition.
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